Saturday, February 25, 2012

Chemo #3, cats, weather, and an assorted mixture


ANTHONY
Since Anthony had to cancel all his summer program auditions because of the cancer, when he found out that there was a opera training program coming to Norman to hold auditions in February he jumped at the chance to audition. The program is called the Taos Opera Institute and is held in New Mexico every summer. They bring in 28 graduate students with budding opera careers to hold classes and lessons in voice, acting, and stage technique for the singers. Anthony said he didn't have a great audition because his upper range hasn't completely come back, but apparently it was good enough, because he was invited to come to New Mexico this summer. It's still up in the air whether he will go for several reasons (chemo will, hopefully, be done by then but we don't know if he'll need additional treatment that will go into the summer, Mom & Dad Eversole's big anniversary & reunion conflicts with the program, and it's a pay-to-sing program that requires a fairly large chunk of change for tuition) but it's still an honor to have been selected.


CHEMOTHERAPY
Anthony's hair fell out and was buzzed off, but it started growing back all thin and fuzzy and weird, so . . .

Anthony's third Chemo treatment was 2/15. He hasn't been feeling well (nausea, vomiting, weakness, tired, headaches, dry/raw/sore/bad taste in mouth), and his sleep schedule is terribly irregular. Needless to say, a little nap was in order during one of the hour long drips.
Three treatments down, five to go.
The chemo symptoms are pretty hindering most of the time, but when he feels good he has plenty to do: two opera roles to prepare, a full recital program to learn, a new list of audition arias to learn and polish, and an Italian course to finish from last semester. Otherwise he does lots of reading, watching movies, taking naps, and playing with kitties.


WEATHER
It snowed for the first time this season on 2/12. It only snowed 3" but the ice was the main concern. The roads are REALLY slick after rain and snow in the winter.

I was feeling homesick one day for the mountains, and the cloud coverage faked me out. See how the dark clouds totally look like mountains? If I hadn't told you, you'd never have guessed you were looking at completely flat Oklahoma land.

They say Oklahoma has some amazing sunsets. Without the mountains I found them quite lacking... that was until the other night. Erica, Benjamin, Anthony & I went to Lake Thunderbird for a picnic and witnessed this;


CATS
Winston and Hemingway are growing like weeds. They're long and lanky, their heads are getting bigger, and Hemingway is suddenly crazy heavy. Winston was the runt of the litter (so we were told) so he's a little behind in the growth area, but he's getting there.
THEN
NOW

They were getting a little crowded in their bed, so we saved up for a new one
*yes, we save up for fun items for our cats instead of ourselves... don't judge

... yet they still seem to end up here

In other news, the cats had been drinking Little Chunk's water so we had to cover it with tin foil and feed the poor fish through fork holes... but before that Hemingway found a fun new way to reach things high on the wall. That's right, he's standing on the fish bowl. Naughty, naughty.

ALISHA
I had a double ear infection and have been on oral and ear drop antibiotics for over a week now. I finished my admission for OU, and applied for the Masters of Social Work program. I've been granted in-state tuition, but we still don't know if I've even gotten in to the school or the program.
Work is going well, I've been with NorthCare for 6 months now, and feel my skills and social work knowledge have really paid off in the lives of the families I am assisting. I hope so at least.


RANDOM
Trying to lose weight with Thin Mints staring you in the face isn't the happiest feeling, it took everything I had not to honk the horn like a banshee.
Anthony remembered Daisies are my favorite and got me this pretty arrangement for Valentines day. I sure like that boy.

Tuesday, February 14, 2012

Sharing a birthday with Chemotherapy

Anthony turned 31 years old on Feb 1st. The day began at 3:00am (there isn't much regular sleep at this house anymore) with prizes, a treasure hunt, kitties, and snacks.

Erica came over for breakfast at 6:00, we made cheesy scrambled spinach and egg crepes, yummy!
Chemotherapy was scheduled at 8:00, which we were rather late for due to a car accident on the freeway ahead of us. When we finally got to the cancer center Anthony's blood was tested, after the white blood count fiasco last time we were a little worried... but all counts looked good and the treatment was administered normally.

Our nurse, Janna, was very kind and attentive. She gathered the director of volunteer services, all the volunteers, a few other nurses, and the patient liaison person as well as various other hospital staff, to sing Happy Birthday to Anthony and gave him a really yummy birthday cupcake. (I surprised him with the balloons. Did you know if they get cold overnight in the trunk of a car they fluff right back up in the warmth of a building?) Anthony carried those balloons around the building with him all day and got a free cookie down in the cafe because he was the "birthday boy."

Back at home my visiting teacher, Phyllis, brought over a delicious apple pie her husband made (Anthony likes birthday pie, not cake), and the Cruz and Taylor families popped over to bring prizes and snacks and ended up staying for pie and ice cream. It wasn't planned, but came together fairly well. By the end of the night Anthony was exhausted. Too bad he doesn't sleep well anymore, the poor guy was pooped.

The next day we headed back to the cancer center for a Neupogen shot to keep the white blood counts elevated for future chemo treatments.
That little baby is $7,000.

Thanks to everyone for the birthday cards, gifts, well wishes, prayers and fasting. We appreciate you in our lives, and are grateful for you on a daily basis.

Saturday, February 4, 2012

House house

How our kitchen looked for a week. It was an adventure. Thankfully Conner was at moms.








The Men in my life


Brians 52nd or is it 25th birthday.











Ian Werstling.











Sean's Birthday. I can't believe he is 13.




Saturday, January 28, 2012

Bad hair day

Today Anthony's illness and everything connected to it became really real.
One of the side effects of Chemotherapy and the Neupogen injections is hair loss.
The hair was literally coming out by the handful, so Anthony decided to buzz it.
Why is it when you see something it seems more real?







He went from McDreamy to Mr. Clean in one day.
At lease he can rock the bald head.

Wednesday, January 25, 2012

Low White Blood Count

Anthony went in for his second round of chemotherapy today as planned, feeling ready for the process. They started out, like they always will, doing a blood work up to make sure all counts were within a healthy range. One thing they check is White Blood Count (WBC) which "are cells of the immune system involved in defending the body against both infectious disease and foreign materials," in other words this is what fights off infection and keeps us healthy. A "normal" white blood count is between 4.0 - 10.5 with 1.5 being a danger zone... Anthony's was 0.1 This means he has a 28% higher risk of contracting a life-threatening infection. In other words, if he has a hint of a fever we need to book it to the ER because his body can't fight ANYTHING off right now.

The nurse said a drop in WBC during chemotherapy is sadly normal, and told Anthony he could not have chemo until his WBC had risen. To aide this process he was given an injection of Neupogen, a white blood cell booster, and is now miserable. The main side effect he is feeling is a "stabbing pain in [his] spine," which makes it difficult for him to get comfortable. He has been in the chair, in the bed, on the floor, walking around, standing still... nothing helps. Maybe we'll try the car? Neupogen injections age given once per day for three days. On a Lymphoma internet forum Anthony found some guy who had to take 12 Vicodin to manage the pain. Our nurse suggested Tylenol.
However, next week after Chemo and every week thereafter, he will be getting a Neulasta injection. Neulasta is also a white blood cell booster that "helps reduce the risk of infection." Worth $7,000 per injection? You read that right. Seven more injections at $7K = $49 thousand dollars. My entire year's salary would cover 4 injectons. Luckily there's a financial application for the Neulasta which, if we're approved, will cover all but $50 per injection. Oddly enough, anti-nausea/infection fighting meds before chemo and the Neulasta injectons after are both more expensive than the chemo meds themselves. The financial advisors have been really helpful as far as getting us various financial applications for various medications.

Our current schedule is a Neupogen injection at 2:00P Thursday and 10:00A Friday, an appointment with the Oncologist at 10:20A on Friday, and try to have chemo again on Wednesday and if that works the Neulasta injection will be Thursday afternoon. We are blessed to live 22.6 miles from the Peggy and Charles Stephenson Oklahoma Cancer Center.

Tuesday, January 17, 2012

It Must Be Love...

Here is a photo of our sweet little Ella. She is so good. Abbie loves to hold her and Ella is really good about it. Isaac comes along and pats her head and kisses her every once in a while. He also smiles at her and makes cute noises at her.

Mom and Dad came to visit one day...so sweet.

No we didn't leave Ella home, she was just sitting below us in her car seat. I think the cute lady that took the picture thought we were just carrying it around with us.
Pinterest...one of the best recipes for finger paint, 1/2 white glue and 1/2 shaving cream + food coloring = lots of fun and easy clean up (the shaving cream acts as a soap). This was a just getting started picture. The after picture would show all the "paint" gone and the entire picture and that table area completely painted. =)

Baby Isaac!

On our way to the park. So cute!!!

It is official, my 2 favorite holidays are the 24th of July and New Years Eve. If you have never been to Eva and Bryan's for their New Years Eve party you might consider it, its the best party of the year!!!

Sunday, January 15, 2012

PowerPort & test results

Recently Anthony had a bone marrow biopsy, Muga and PET scan, all previously explained here. Results; bone marrow biopsy was clean, Muga shows a perfectly working heart, and the PET scan showed the only conclusive cancerous cells are the ones in the mediastinum (the tumor originally in question). He also has an upper left lobe infection in the lungs, and some of the other lymph nodes had some potential growths, but that was inconclusive. So, they'll be treating the Hodgkin's Lymphoma as if the large mediastinal tumor were the only one.

On 1/6/12 Anthony had a PowerPort installed. The port itself is placed below the clavicle, and the catheter is drawn up the neck and inserted directly into the Jugular vein.
Triangle nubbs can be felt through the skin, needle inserted in center.

1/6/12

1/15/12

1/11/12 was the first Chemotherapy session. Two sessions equals a cycle and Anthony will have four cycles, so eight treatments total. He's on the ABVD regime, which is explained here along with possible side effects. Some side effects already experienced are nausea, fatigue, sore mouth, taste changes, numbness in hands, and discolored urine. Hair loss/changes are expected in the next few weeks. Because Anthony has such thick hair he may just have thinning and will not need to shave his head. We'll see what happens.
The nurse had Anthony chew on ice during the Adriamycin administration as this could lessen mouth sores or blisters.

We have an appointment with the Oncologist, Dr, Ikeguchi on 1/23 and the next Chemo session is 1/25. Along with all the negative side effects there have been some positives noted; Anthony's cough has 90% cleared up. Dr. Ideguchi said that might happen.